International. 20 affiliated groups. Founded 1987. Emotional support for persons with Batten disease. Information and referrals, family support, annual conferences and newsletter. Assistance provided for starting new groups.
Write:
Batten Disease Support and Research
166 Humprhies Dr.
Reynoldsburg, OH 43068
Voice: 1-800-448-4570
Website: http://www.bdsra.org
E-mail: bdsra1@bdsra.org
Verified: 7/11/2012