International. Founded 1996. Mutual support for parents of children with Costello syndrome. Phone support, literature, pen pals, biannual international conference, information and referrals.
Write:
International Costello Syndrome Support Group, c/o Colin and Cath Stone
90 Parkfield Rd. North
New Moston, UK M40 3RQ
Voice: +44 161 682 2470
Website: http://costellokids.com or http://forum.costellokids.com (message board)
Verified: 7/11/2012