National. Founded 1997. Support, information, education and networking for parents of children with Dubowitz syndrome and concerned professionals. Information on assistive technology and educational issues. Referrals, pen pals, advocacy and information on geneticists.
Write:
NE Dubowitz Syndrome Support, c/o Sharon Terzian
106 Verndale St.
Warwick, RI 02889
Voice: 401-737-3138
Website: http://www.dubowitzsyndrome.net
E-mail: dubowitzsyndrome@netzero.net
Verified: 7/26/2012