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Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Ehlers-Danlos National Foundation

National. 35 local groups. Founded 1985. Provides resources for Ehlers-Danlos syndrome patients, families and health care professionals. Mission is to disseminate accurate information, provide a network of support and communication and to foster research. Online message boards for EDNF members.
Write:
EDNF
1760 Old Meadow Rd., Ste 500
McLean, VA 22102
Voice: 703-506-2892
Fax: 703-506-3266
Website: http://www.ednf.org
E-mail: ednfstaff@ednf.org
Verified: 8/7/2012

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