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Self Help Clearinghouse

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Gorlin Syndrome

Basal Cell Carcinoma Nevus Syndrome Life Support Network * National network. Provides support services to patients, families and medical professionals dealing with the many manifestations of basal cell carcinoma nevus syndrome (aka Gorlin syndrome or nevoid basal cell syndrome). Offers online forum, quarterly newsletter, annual retreats and conferences for families. Periodiceducational regional meetings for understanding treatment options, self-esteem building, clinical trial opportunities and raising family awareness.
Write:
BCCNS
PO Box 321
Burton, OH 44021
Voice: 1-866-834-1895 or 440-834-0011
Fax: 440-834-0132
Website: http://www.gorlinsyndrome.org
E-mail: info@bccns.org
Verified: 7/17/2012

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