(BILINGUAL) National network. Founded 1984. Provides support, education and advocacy for people with hydrocephalus and their families. Provides a wealth of resource materials on hydrocephalus for all age groups, quarterly newsletter, directory of neurosurgeons, bi-annual national conference and scholarships for young adults. Support and information available in English and Spanish.
Write:
Hydrocephalus Association
870 Market St., Suite 705
San Francisco, CA 94102
Voice: 1-888-598-3789 or 415-732-7040
Fax: 415-732-7044
Website: http://www.hydroassoc.org
E-mail: info@hydroassoc.org
Verified: 8/15/2012

International network. Founded 1979. Mission is to establish and facilitate a communication network among families or adult-to-adult, provide informational and educational assistance to individuals and families affected by hydrocephalus and increase public awareness. Promotes and supports research on the cause, prevention and treatment of hydrocephalus. Guidelines to help start support groups available. Help Sheets, brochures, physician referrals and quarterly newsletter. Bi-annual conference, family contact with others in your area or nearby.
Write:
National Hydrocephalus Foundation
12413 Centralia Rd.
Lakewood, CA 90715-1623
Voice: 1-888-857-3434 or 562-924-6666
Website: http://nhfonline.org
E-mail: debbifields@nhfonline.org
Verified: 7/25/2012