International network. Founded 1995. Dedicated to family support, research and physician awareness on incontinentia pigmenti. Maintains international database of patients.
Write:
Incontinentia Int'l Pigmenti Fdn.
30 East 72nd St., 16th floor
New York, NY 10021
Voice: 212-452-1231
Fax: 212-452-1406
Website: http://www.ipif.org
E-mail: ipif@ipif.org
Verified: 7/27/2012