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This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

National Marfan Foundation

National network. Founded 1981. Network includes chapters, support groups and volunteer telephone support contacts. Provides information on Marfan syndrome and related connective tissue disorders to patients, families, medical professionals and the public. Provides a means for patients and relatives to share experiences and support one another. Supports and fosters research. Conference, newsletter and publications.
Write:
National Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050
Voice: 1-800-862-7326 or 516-883-8712
Fax: 516-883-8040
Website: http://www.marfan.org
E-mail: staff@marfan.org
Verified: 8/14/2012

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