National network. Founded 1980. Support and information for persons affected by metatropic dwarfism. Networks families and shares information. Offers phone support, limited literature, information and referrals.
Write:
Metatropic Dysplasia Dwarf Reg.
3393 Geneva Dr.
Santa Clara, CA 95051
Voice: 408-244-6354
E-mail: figone@netgate.net
Verified: 8/2/2012