National network. 13 chapters. 24 affiliated groups. Founded 1995. Provides support and networking to persons with mitochondrial disease, a genetic degenerative disease, and their families. Promotes research and education for the diagnosis, treatment and cure. Chapter support groups, quarterly newsletter, information and referrals, library of medical publications, patient registry, phone help and annual symposium. Awards research grants.
Write:
UMDF
8085 Saltsburg Rd. Ste. 201
Pittsburgh, PA 15239
Voice: 412-793-8077
Fax: 412-793-6477
Website: http://www.umdf.org
E-mail: info@umdf.org
Verified: 7/25/2012