International network. Founded 1992. Provides support for families affected by Niemann-Pick disease type A, B and C. Promotes and supports research. Provides newsletter, family directory, networking, family conference, phone support, information and referrals. Guidelines available to help start similar groups.
Write:
National Niemann-Pick Disease Foundation
PO Box 49
415 Madison Avenue
Ft. Atkinson, WI 53538
Voice: 920-563-0930
Fax: 920-563-0931
Website: http://www.nnpdf.org
E-mail: nnpdf@idcnet.com
Verified: 9/21/2011