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Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Pierre Robin Network

National network. Founded 1999. Support and education for individuals, parents, caregivers and professionals dealing with Pierre Robin syndrome or sequence. Literature, newsletter, information, advocacy, online e-mail group and bulletin board. Outreach committee comprised of families worldwide available to correspond via mail, phone, in person or e-mail.
Write:
Pierre Robin Network
3604 Biscayne
Quincy, IL 62305
Fax: 217-224-6659
Website: http://www.pierrerobin.org
E-mail: info@pierrerobin.org
Verified: 8/3/2012

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