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Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

PXE International, Inc.

International. 50 affiliated groups. Founded 1995. Supports patients and educates clinicians. Offers support groups, listservs, literature, semi-annual newsletter, phone and mail contacts. Offers assistance in starting similar groups. Initiates, funds and manages research.
Write:
PXE International, Inc.
4301 Connecticut Ave. NW Suite 404
Washington, DC 20008-2369
Voice: 202-362-9599
Fax: 202-966-8553
Website: http://www.pxe.org
E-mail: info@pxe.org
Verified: 7/27/2012

National Association for Pseudoxanthoma Elasticum

National network. Founded 1988. Support, education, research and advocacy for persons with Pseudoxanthoma Elasticum, their families, interested others and professionals. Phone support, newsletter, information and referrals. Donations appreciated and tax-deductible.
Write:
NAPE
8764 Manchester Rd., Suite 200
Saint Louis, MO 63144-2724
Voice: 314-962-0100 (voice/fax)
Fax: 314-962-0100 (voice/fax)
Website: http://www.pxenape.org
E-mail: napestlouis@sbcglobal.net
Verified: 7/31/2012

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