International. 17 affiliated groups. Founded 1985. For parents, interested professionals and others concerned with Rett syndrome. Provides information and referral, peer support among parents and funds research. Quarterly newsletter. Dues free/corresponding partner; $40/yr. (active partner); $50/yr. (international); $175/yr. (organization).
Write:
International Rett Syndrome Fdn.
4600 Devitt Dr.
Cincinnati, OH 05246
Voice: 1-800-818-7388 or 513-874-3020
Fax: 513-874-2520
Website: http://www.rettsyndrome.org
E-mail: admin@rettsyndrome.org
Verified: 7/17/2012