International network. Founded 1984. Provides information and mutual support for families of children with Sotos syndrome. Newsletter, phone support, annual conferences, information and referrals.
Write:
Sotos Syndrome Support Association
P.O. Box 4626
Wheaton, IL 60189
Voice: 1-888-246-7772
Website: http://www.sotossyndrome.org
E-mail: sssa@sotossyndrome.org
Verified: 8/15/2012