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Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Syndromes Without A Name (SWAN) USA

National. Founded 2004. Mutual support network and information for parents of children with an undiagnosed or unnamed condition. Newsletter and E-list discussion group for parents to share information and provide each other with support.
Write:
Syndromes Without A Name
1745 Lorna Lane
Otsego, MI 49078
Voice: 1-888-880-7926 or 269-694-6061
Website: http://www.undiagnosed-usa.org
E-mail: amyclugston@undiagnosed-usa.org
Verified: 7/17/2012

Hearts and Hands

Model. 1 group in NC. Founded 1993. Emotional, spiritual and educational support for persons with either rare or undiagnosed illnesses and their families. Special interest in loin pain hematuria syndrome.
Write:
Hearts and Hands, c/o Winoka Plummer
1648 Oliver's Crossing Circle
Winston-Salem, NC 27127
Voice: 336-785-7612
Verified: 8/9/2012

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