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Self Help Clearinghouse

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VHL Family Alliance

(MULTILINGUAL) International network. 35 US chapters; 18 foreign affiliates. Founded 1993. Opportunity for families affected by VHL to share their knowledge and experiences with each other and the medical community. Goal is to improve diagnosis, treatment and quality of life for VHL families. Newsletter, phone support, education, tissue bank and handbook. Literature available in Spanish, German, French, Japanese, Dutch and other languages. Funds research. Assistance in starting local chapters.
Write:
VHL Family Alliance
2001 Beacon St., Suite 208
Boston, MA 02135-7787
Voice: 1-800-767-4845 or 617-277-5667
Fax: 858-712-8712
Website: http://www.vhl.org
Verified: 7/31/2012

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