National. 285 chapters. Founded 1951. Mutual support for persons who have heart disease, their families, friends and other interested persons. Quarterly magazine and chapter development kit. Write: Mended Hearts 8150 North Central Expressway, M2075 Dallas, TX 75206 Voice: 1-888-432-7899 or 214-296-9252 Fax: 214-296-9252 Website: http://www.mendedhearts.org E-mail: email@example.com Verified: 7/2/2012
National. 54 affiliated groups. Founded 1987. Assists individuals suffering from mitral valve prolapse syndrome and dysautonomia to find support and understanding. Education on symptoms and treatment. Newsletter and literature. Write: Nat'l Society MVP and Dysautonomia 880 Montclair Rd., Suite 370 Birmingham, AL 35213 Voice: 205-592-5765 or 1-800-541-8602 Fax: 205-592-5707 Website: http://www.mvprolapse.com E-mail: firstname.lastname@example.org Verified: 8/15/2012
International. 23 affiliated groups. Founded 1991. Provides support and education to patients, families and friends about mitral valve prolapse syndrome. Newsletter, phone support, literature, conferences and support group meetings. E-publishes 'Survival Guide.' Offers guidelines to start similar groups. Write: Soc. for MVP Syndrome P.O. Box 431 Itasca, IL 60143-0431 Voice: 630-250-9327 Fax: 630-773-0478 Website: http://www.mitralvalveprolapse.com E-mail: email@example.com Verified: 7/31/2012
National. 3 affiliated groups. Founded 1985. Mutual support for families and adults affected by congenital or acquired heart defects. Also provides bereavement services. Matches parents together for support, referrals to local support groups nationwide. Promotes public awareness of congenital heart defects. Books, awareness products, advocacy assistance and assistance in starting groups. Write: Kids With Heart NACHD, Inc. 1578 Careful Dr. Green Bay, WI 54304 Voice: 1-800-538-5390 or 920-498-0058 (voice/fax) (Mon.-Fri., 8am-3pm CST) Fax: 920-498-0058 Website: http://www.kidswithheart.org E-mail: firstname.lastname@example.org Verified: 7/24/2012
International. 5 affiliated groups. Founded 1992. Works to save the lives of young persons who are predisposed to sudden death due to cardiac arrhythmia. Offers networking, newsletter, literature, advocacy, information, phone support and referrals. Write: SADS Foundation 508 E. South Temple, Ste. 20 Salt Lake City, UT 84102 Voice: 1-800-786-7723 or 801-531-0937 Fax: 801-531-0945 Website: http://www.stopsads.org E-mail: email@example.com Verified: 8/14/2012
Online. Founded 2000. Regular exchange of messages, listserv and newsgroup. Chat meetings. E-mail pen pal program to support new members. Offers support, information and encouragement in a fun and interactive environment. Also provides information on local groups. Website: http://www.pacemakerclub.com Verified: 6/29/2012
Online. Provides support and information on pediatric cardiomyopathy. Offers website discussion forum and biannual newsletter. Working on plans to start community support groups. Website: http://www.childrenscardiomyopathy.org Verified: 6/29/2012
Online. Offers support, information and resources to families of children with congenital heart defects, acquired heart disease and adults with congenital heart defects. Also open to interested professionals. Website: http://www.tchin.org Verified: 6/29/2012
International network. 50 chapters. Founded 2004. A coalition of charities, patient groups, patients, caregivers, medical professionals and allied professionals, working independently, but under the A-A umbrella to promote the timely and effective diagnosis and treatment of arrhythmias. Write: Arrhythmia Alliance P.O. Box 3697, Stratford upon Avon Warwickshire, UK CV37 8YL Voice: +44 (0) 17890450787 Website: http://www.heartrhythmcharity.org.uk E-mail: firstname.lastname@example.org Verified: 7/31/2012
National. Provides support, resources, networking and hope to families affected by congenital heart defects. Provides newsletter, literature, phone support, annual picnic and advocacy. Write: Little Hearts, Inc. P.O. Box 171 110 Court St. Ste. 2 Cromwell, CT 06416 Voice: 1-866-435-4673 Fax: 860-635-0006 Website: http://www.littlehearts.org E-mail: email@example.com Verified: 7/26/2012
(BILINGUAL) National. 15 groups. Founded 2005. Mutual support through family matching program (matches families with others that have a similar congenital heart defect diagnosis or by proximity), moderated online message board and listserv. Provides support, education and advocacy for those affected by congenital heart defects by creating alliances with fellow families, hospitals, support groups and the community. Newsletter, online support group and assistance in starting local support groups available. Write: It's My Heart 1775 St. James Place, Suite 130 Houston, TX 77056 Voice: 1-888-432-7807; Spanish: 1-877-586-6888 Fax: 1-866-222-0334 Website: http://www.itsmyheart.org E-mail: firstname.lastname@example.org Verified: 7/2/2012
Online. Support community connecting those who have suffered sudden cardiac arrest, have an implantable defibrillator, are family or caregivers of someone who suffered a cardiac arrest and all who want to interact with others interested in reducing sudden cardiac arrest. Write: SCAA 1250 Connecticut Ave., NW, #800 Washington, DC 20036 Website: http://www.suddencardiacarrest.org (click 'Online Community' link on bottom left corner of Home page) Verified: 7/11/2012
Online. Support for women with heart disease, their family and friends. Write: WomenHeart - NCWHD 818 18th St. NW, Ste 1000 Washington, DC 20006 Website: http://www.womenheart.org/supportnetworks E-mail: email@example.com Verified: 6/29/2012
Online. Support for people who are suffering from Long QT (a form of Cardiac Arrhythmia.) Group is open to friends and family. Website: http://health.groups.yahoo.com/longqt E-mail: firstname.lastname@example.org Verified: 8/9/2012
Online. Offers support for those with hypertropic cardio-mypathy (a condition where the heart muscle become thick). Write: Hypertropic CardioMyopathy Assoc. 328 Green Pond Rd., PO Box 306 Hibernia, NJ 07842 Voice: 973-983-7429 Fax: 973-983-7870 Website: http://www4hcm.org or online support forum http://www.4hcm.org/forums/forum.php Verified: 7/31/2012
Online. Provides mutual support for people living with atrial septal defect, a congenital heart disease. Website: http://www.asdsurvivors.org Verified: 8/15/2012
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelpIf you find information that is not current, please contact American Self-Help Group Clearinghouse at: email@example.comCopyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: firstname.lastname@example.org
Copyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.
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