The purpose of the GeneRosity Registry is to collect health information and DNA testing results from adults who have purchased direct-to-consumer DNA from companies such as AncestryDNA™, 23andMe®, and MyHeritage™ for use in future medical and genetic research studies. You may have purchased the DNA testing for personal reasons, however combining your information with the information from thousands of others will help us determine patterns that affect the prevention, development, and treatment of diseases.
If you willingly participant in this registry, you will be asked to upload your genetic data, provide contact information, and answer questions regarding your health and the health of your family members. This data will be stored on secure, encrypted computers with restricted access. If you have received medical care at an Intermountain hospital or clinic, additional data will be pulled from your medical records. This additional data are routine historical information and laboratory results, which are already accessible to physicians and/or nurses at Intermountain. If you agree, you may be contacted for future genetic and/or medical research studies based on your genetic or medical profiles. Participation in these future studies will be voluntary and will require additional, separate informed consent.
There are no research-specific medications or other procedures required for this registry. There is a potential risk of the inadvertent release of confidential data, however, we are using secure encrypted methods of data upload and storage to minimize this risk. Access to identifying data will be restricted.
There are no expected personal benefits for participating in this research. However, if the researchers/investigators are successful in future research using this data, this will benefit others. You will not receive any monetary or other forms of compensation for participating in this research registry. No individual genetic results will be returned to you.
Get Care Now
Get care for low-level urgent conditions through a video chat with a provider, 24/7, on your computer or mobile device.Learn More.
View wait times and save your place in line at an Intermountain InstaCare location near you.
If this is an emergency please go to the nearest emergency room or call 911.
Intermountain Healthcare is a Utah-based, not-for-profit system of 22 hospitals, a Medical Group with more than 1,600 physicians and advanced practice clinicians at about 180 clinics, a health plans division called SelectHealth, and other health services. Helping people live the healthiest lives possible, Intermountain is widely recognized as a leader in clinical quality improvement and in efficient healthcare delivery.
Still not finding what you are looking for?
Copyright ©2018, Intermountain Healthcare, All rights reserved.