Working towards better health and quality of life for children with leukodystrophies.
Intermountain Children’s Health is proud to offer care to your child and family affected by leukodystrophies. We have cared for hundreds of children, through evaluation, care, and treatment of inherited leukodystrophies. We also offer prenatal and pregnancy counseling.
Leukodystrophy is a group of rare diseases that affect the white matter of the brain. The white matter has nerve fibers covered by a protective layer called myelin, which helps send nerve signals quickly. Children diagnosed with leukodystrophy struggle with moving, speaking, seeing, hearing, and thinking.
University of Utah School of Medicine, Department of Pediatrics
Our program in Salt Lake City, Utah is the center of leukodystrophy care in the Mountain West. Opened in 2004, we partner with the University of Utah School of Medicine, Department of Pediatrics to offer the Leukodystrophy Clinic.
Leukodystrophy Care Network Certified Center
Intermountain Children's Health is a proud Leukodystrophy Care Network Certified Center. The Leukodystrophy Care Network (LCN) is a community of affected families, organizations, and medical providers committed to bettering the health and quality of life of individuals affected by leukodystrophies.
Western Leukodystrophy Project
The Western Leukodystrophy Project is one of the largest longitudinal studies of children with leukodystrophies. The program works nationally and internationally on clinical and drug trials through foundations and support groups, including ALD Connect, GLIA (The Global Leukodystrophy Initiative), Hunter's Hope/Leukodystrophy Care Network, and the ULF (United Leukodystrophy Foundation). Enrollment in the study is open to interested and qualified families.