Brain & Spine Center

Spina Bifida Program at Intermountain Children's Health

The Spina Bifida Clinic at Primary Children's Hospital takes a multidisciplinary approach to the care of children with myelomeningocele, meningocele, lipomeningocele and other neural tube defects such as tethered cord. Specialists in pediatric neurosurgery, orthopedics, PM&R (physical medicine and rehab), and urology will work together in clinic to provide a personalized treatment plan for your child.

The Spina Bifida Clinic at Primary Children’s Hospital, Salt Lake City, Utah was started in 1954. The program, in addition to the clinic, provides prenatal counseling for families, inpatient consultation and education, clinical education for the hospital’s residency and fellowship program, vocational, education, and recreational programs throughout the lifespan.

What to Expect

Our providers follow your child’s development closely with occupational therapist, physical therapist and psychologist who can help maximize your child’s physical, social and cognitive development. Nutrition and weight management is especially important for children with SB and a dietician is available in clinic as well to review your child’s growth.

Our clinic meets three Fridays a month from 8am – 12pm. Your child will be seen by physicians, therapists, a nutritionist, nursing, and when needed, social work and psychology. You may not see each provider at every visit, but we are all available to help your child address issues associated with spina bifida.

Typically, you will be at the clinic for 2-3 hours to give you enough time to see all the providers who need to see your child that day. Though the visits can be long, it is important that you have time to meet with the providers and ask questions. With each annual visit, your child will have a bladder study that is scheduled before or during clinic.

Appointments for Friday afternoons in the Independent Skills Clinic typically last about an hour to learn about bladder and bowel programs or to meet with providers for mobility devices such as wheelchairs.

Infants and children are usually seen in the first two clinics of the month, and adolescent and young adult are seen the fourth Friday of the month. Each child will get their own room and the providers and members of the multidisciplinary team will rotate through each patient. You will have an opportunity to sit with the MA at the beginning of the visit and review what members will see your child. At this time, you can request other providers that you feel your child needs to see.

What Sets Us Apart

Healthcare Transition Support

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