Center for Cancer & Blood Disorders
Supportive Resources and Services
As your child is treated for childhood cancer, you may find you need help to meet the demands that will be placed on you. This section contains information and links to some of the resources that are available for families of children with cancer.
Cancer Resources and Support
SOAP - Supportive Oncology for Adolescents and PediatricsThe SOAP team helps children diagnosed with cancer or a blood disease. The SOAP team can provide emotional, social, and spiritual support, symptom management and help with medical decision making. We are available to all patients at any point in their journey. By focusing on the whole child or adolescent, the SOAP team helps patients and families through the process of their illness.
The team is comprised of a specialized and dedicated group of physicians, advanced care practitioners, nurses, social workers, and chaplains that work with the hematology/oncology team to optimize your care.
What to Expect
- Assessment and management of pain and other symptoms related to your cancer or treatment.
- Support for your family in making difficult medical decision.
- Care coordination with your primary team and other medical resources.
- Care planning focused with your goals, values, and beliefs.
- Assistance with the emotional, social, and spiritual needs of your family.
- Transition planning for home-based or comfort care if needed.
- Family meetings as desired to discuss issues and concerns surrounding your child’s diagnosis.
To learn more, or make a referral, call us at (801) 662-3770.
Huntsman-Intermountain Adolescent and Young Adult Cancer Care Program
The Huntsman-Intermountain Adolescent and Young Adult Cancer Care Program (HI-AYA) offers patient navigation and support to teens and adults diagnosed with cancer.
Learn more about HI-AYA >
You may receive homecare services. The home care company you choose will depend on where you live, the type of service needed, and your insurance coverage. Most homecare companies will assign a nurse case manager to assist with coordination of visits and supplies.
Homecare personnel are not employees of the hospital or your doctor’s office. They may have different ways of doing things than the hospital. Please feel free to ask them if you have any questions about how or why things are done differently. The goal of home care is to be a resource to families. Services home care companies may provide:
- Equipment, supplies and medications
- Central line care, including troubleshooting problems
- Nutrition through an IV catheter or feeding tube
- Obtaining blood samples from a catheter
- Occupational, physical, and speech therapy
- Pain Management
- Social Work Services
- End-of-Life Services
For more information on homecare services, talk to our discharge planner.
Wish Fulfillment Organizations
Wish-fulfillment organizations grant wishes to children who are diagnosed with a life-threatening or terminal illness. Wishes are generally granted to children during or shortly after treatment. Wish-granting organizations generally provide one wish per child. Feel free to talk with your social worker and see the links below for more information.
- American Cancer Society
- Cancer Care Inc
- CureSearch for Childrens Cancer
- Huntsman Cancer Hospital
- National Cancer Institute
- Songs of Love
- Utah Parent Center
Patient Education Documents
- Bone marrow aspirate and biopsy (Let's Talk About... pediatric brochure)
- Cancer treatment and nutrition (Let's Talk About... pediatric brochure)
- Cancer treatment, going home after (Let's Talk About... pediatric brochure)
- Central Line Care -- Implanted Central Line
- Central Line Care -- Tunneled Central Line
- Central Line Care-- Peripherally Inserted Central Catheter
- Moles and melanoma (Let's Talk About... pediatric brochure)
- Mouth and throat sores (Let's Talk About... pediatric brochure)