What is the INSPIRE registry?
The INSPIRE registry is a confidential collection of blood and tissue samples and medical information that comes from people like you. The people who participate in the registry may be healthy or may have a medical condition. This information helps Intermountain doctors and scientists learn how diseases can be prevented, predicted, and treated.
Over 30,000 people have joined the registry so far. Their information and samples have been used in over 250 important research studies.
Participation in the Intermountain INSPIRE Registry is voluntary (by choice). Anyone who is 18 or over is invited to learn more.
The following video provides information about the INSPIRE registry. Please watch the video prior to participating in the study.
Why is this study important?
One of the best ways to quickly improve medical care is through research. The medical information from INSPIRE registry participants will be used for research now and in the future. The research is taking place here at Intermountain Healthcare. We also work with other doctors and scientists to help people all around the world. Our goal is to improve the lives of patients everywhere, now and for many years to come.
Some INSPIRE Registry research projects include learning how:
- Genetics (your family health history) and the environment can cause disease.
- Risk factors that may cause health problems or make them worse. (A risk factor is something that increases your chance of getting a disease.)
- Behavior and lifestyle choices can be changed to prevent disease.
- Treatments can be tailored to each person’s health needs
How can I participate?
Participation in this study is voluntary. There are no doctor or clinic visits. You will not be paid nor will you have to pay anything to participate. If you choose to sign up for INSPIRE you will be asked to:
• Donate a blood sample
• Answer questions about your personal and family health history
• Share your medical records
• Give permission to be contacted regarding future research opportunities
See the Frequently Asked Questions page for answers to other common questions about the study.