Imagine being a teenager in high school busy connecting with your friends, dreaming about the future, and developing your self-identify. Or imagine you’re in your early 20s or 30s; maybe you’re in college or you’ve just started your career and family. 

Now imagine being given the news that you have cancer. That can be a traumatic experience for anyone, but it can be particularly difficult for young people. 

Adolescents and young adults (AYAs) are patients between the ages of 15-39 who’ve been diagnosed with cancer. A cancer diagnosis presents different challenges for teens and young adults than for younger children or older adults. Cancer can disrupt big milestones that commonly happen during this age range like completing school, choosing a career path, building personal relationships, raising a family, and working toward emotional, social, and financial independence. 

Here are some facts about adolescent and young adult cancer from the National Cancer Institute, American Cancer Society and National Comprehensive Cancer Network:

1. In 2020, about 89,500 new adolescents and young adults are expected to be diagnosed with cancer in the United States.
2. Cancer and cancer treatment can affect young patients’ ability to have children in the future. This can be a major concern for young cancer patients. It’s important for AYAs to discuss fertility preservation options with their doctor before they start treatment.
3. Lack of money to pay for medical costs during cancer treatment is a very common concern for AYAs. Young people don’t always have a job or health insurance. If they’re working, treatment can affect their ability to keep working and pay for both medical and living expenses. Financial stress may also affect AYA patients’ caregivers.
4. AYAs often experience a sense of isolation from friends and family who may not fully comprehend what they’re experiencing. For many AYAs it’s helpful to connect with other patients their age who have a cancer diagnosis.
5. AYA cancer survivors have a high risk of long-term side-effects including infertility, sexual dysfunction, heart problems, and new future cancers. Mental health illnesses are also common among AYA cancer survivors. It’s important to receive both regular physical and psychological care after cancer treatment.

Adolescents and young adults should talk to their healthcare teams if they’re experiencing concerns about any of the topics mentioned above. Many resources are available to help. The Huntsman-Intermountain Adolescent and Young Adult Cancer Care Program (HIAYA) has patient navigators who are ready to help young patients and their caregivers find resources and navigate their cancer care. To connect with an AYA patient navigator, call 801-507-3889 or email aya@imail.org. To stay up to date with the HIAYA program and events, follow HIAYA on social media: Facebook, Instagram, and Twitter.