The Cystic Fibrosis Care Center at Primary Children's Hospital is a fully accredited multidisciplinary center that specializes in the coordinated care and treatment of cystic fibrosis. Our center is the only pediatric CF center in Utah and we serve patients from multiple mountain west states including: Wyoming, Idaho, Montana, Colorado & Nevada. Our multidisciplinary team helps and supports patients and families in the hospital and in outpatient clinic from the time of diagnosis through transitioning to adult care. 

What Sets Us Apart

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National Recognition & Accreditation

  • Fundamentals to OneCF Learning and Leadership Collaborative Award from the CFF, 2018
  • Full accreditation based on a site visit from the CF Foundation, February 2017
  • Fundamentals in Learning and Leadership Collaborative Award from the CFF, 2017
  • The Pediatric Pharmacy Advocacy Group (PPAG) Best Practice Award, 2017
  • The Mary M. Kontos Care Champion Award to Katie McDonald, RD, 2017
  • The Annual Cystic Fibrosis Foundation's Quality Care Award: Recognizing Outstanding QI Processes and Accomplishments, 2016 - 2017
  • Outstanding Partnership Award Between CFF Care Center and Chapter Small Market, 2011
  • The Annual Cystic Fibrosis Foundation's Quality Care Award: Recognizing Outstanding QI Processes and Accomplishments, 2007 - 2008
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Evidenced-Based Care & Excellent Outcomes

Cystic Fibrosis Foundation Guidelines

We adhere to care guidelines published by the CF Foundation. If a guideline does not exist for a specific clinical scenario, we utilize evidence based data and experience from our center and other centers to create local standardized protocols.

Excellent Outcomes

We are committed to excellent outcomes, management and performance improvement.

  • 2017: 2nd in the nation for lung function in patients 6 - 17 years old in centers with >100 patients
  • 2017: 3rd in the nation for lung function in patients 6 - 12 years old among all centers
  • 2017: 10th in the nation for lung function in patients 13 - 17 years old among all centers

Participation in Multi-center Clinical Studies

Research has always been the backbone of CF clinical care. Most available therapies nowadays were developed through clinical studies. Our center is an active member of the Therapeutic Development Network (TDN); the research arm of the CF Foundation. 

Focus on Quality Improvement

Our center is trained in quality improvement methodology through two grants that we received from the CF Foundation.

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Contact Us

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Scheduling & Questions

Schedule an appointment by calling 801-213-3599 and choosing option 1. For after hours urgent medical concerns, contact the pulmonologist on call at 801-662-1000. For acute concerns or crisis, seek emergency care in the emergency department or call 911.

You can also send a message to your provider or nurse via MyHealth and we will return your message as soon as possible during business hours. 

When to call the clinic: 

  • An increase in cough or wheeze
  • An increase in sputum amount or color change
  • New or increase in shortness of breath
  • New or increased sinus pain or headache
  • Fever, chills or sweats  
  • Absences from school due to illness or feeling sick
  • Poor appetite
  • Weight loss
  • Changes in stool pattern or output
  • Pain in chest and or back without coughing
  • If the patient has CF-related diabetes and blood sugars are higher than normal.
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What to Expect

Learn how to prepare for your appointment with the CF Clinic.
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Resources for Patients & Families

Learn more about the resources available to children with CF and their families.
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Outcomes

The Cystic Fibrosis Center at Primary Children's Hospital is committed to outcomes, management and performance improvement.
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Research Projects

If you have specific questions regarding a particular clinical trial or would like to know how to get involved, contact us for more information. 

Jane Vroom
jane.vroom@hsc.utah.edu
801-587-7468

Jessica Francis
jessica.a.francis@hsc.utah.edu
801-587-8105

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Cystic Fibrosis Adult Care

We collaborate with the adult care team at the University of Utah Hospital and School of Medicine to provide comprehensive care to our CF patients transitioning to adult care. 

To schedule an appointment with the adult center, call 801-585-2804

Primary Children's Hospital Cystic Fibrosis Clinic

Open today: 9am-5pm
2nd floor, Please check in at the security desk on the 1st floor for directions to the clinic