Pulmonology

Cystic Fibrosis Care Center

What Sets Us Apart

The Cystic Fibrosis Care Center at Primary Children's Hospital is a fully accredited multidisciplinary center that specializes in the coordinated care and treatment of cystic fibrosis. Our center is the only pediatric CF center in Utah and we serve patients from multiple mountain west states including: Wyoming, Idaho, Montana, Colorado, and Nevada. Our multidisciplinary team helps and supports patients and families in the hospital and in outpatient clinic from the time of diagnosis through transitioning to adult care.
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Contact Us

Schedule an appointment by calling 801-213-3599 and choosing option 1. For after hours urgent medical concerns, contact the pulmonologist on call at 801-662-1000. For acute concerns or crisis, seek emergency care in the emergency department or call 911.

You can also send a message to your provider or nurse via MyHealth and we will return your message as soon as possible during business hours. 

When to call the clinic: 

  • An increase in cough or wheeze
  • An increase in sputum amount or color change
  • New or increase in shortness of breath
  • New or increased sinus pain or headache
  • Fever, chills or sweats  
  • Absences from school due to illness or feeling sick
  • Poor appetite
  • Weight loss
  • Changes in stool pattern or output
  • Pain in chest and or back without coughing
  • If the patient has CF-related diabetes and blood sugars are higher than normal.

Emersyn's Story

Emersyn Drollinger started collecting caps from her Cayston treatments and wondered what she could make with them.  Her Dad, who works as a nurse, brought her home a few more options of colors from his employment.  She wanted to make something that had to do with CF and we dreamed up a pair of colorful happy lungs.  Then she wanted to give them away to the people who help her lungs stay healthy.  It was a work of art, but mostly a work of love. She thanks the nurses, doctors, respiratory therapists, pharmacists, and the whole team who helps keep her able to live and breathe with happy lungs and fill her life with all the color possible.

Multidisciplinary Team

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If you have specific questions regarding a particular clinical trial or would like to know how to get involved, contact us for more information.

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We collaborate with the adult care team at the University of Utah Hospital and School of Medicine to provide comprehensive care to our CF patients transitioning to adult care.