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What happens after I sign up for the study?

After you sign up, you will be contacted to schedule a time to give your blood sample. You may be asked to fill out personal and family health history forms (questionnaires). This may take up to an hour to complete.

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What will I be asked to do?

You will be asked to give a blood sample and share information from your medical history.

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What are the risks?

There is very little risk with participating in this study. A one-time blood draw is needed to participate. Complications from blood draws are rare.  There are no research-specific medications, doctor visits, or procedures. Your health information will be kept confidential and securely stored.

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Will I have to pay for the testing?

No. There are no costs to participate. The study will pay for the blood draw.

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What are the benefits?

By participating, your health information will be used to help researchers find the causes of certain diseases as well as ways to prevent and treat them. This may benefit others in the future. There are no other expected personal benefits or compensation for participating in this research.

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Do I need to take any investigational drugs?

No. There are no investigational drugs in this study.

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Why are registries like INSPIRE important to medical research?

The information and blood samples you provide will be used to study a variety of medical conditions. Research studies have used the INSPIRE registry to:

  • Research genetic (inherited) and environmental causes of disease.

  • Evaluate risk factors known to cause health problems or make them worse. (A risk factor is something that increases your chance of getting a disease.)

  • Research behaviors and lifestyles (the ways we live) that can prevent disease.

  • Understand how treatments can be tailored to each person’s health needs.

These studies are rapidly changing the way medical care is provided every day. The information stored in the INSPIRE registry will be used in the future - in ways we can’t imagine right now. This registry has the potential to assist many researchers at Intermountain Healthcare and around the world. Our goal is to improve the lives of our patients now and for many years to come.

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