Colorectal conditions are difficult for both the child and his or her family. Learn more about some of the resources available to families with colorectal conditions.

Local Resources

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Colorectal Center Family Support Group

The Colorectal Center Family Support Group is a private Facebook group for patients and parents to discuss issues related to anorectal malformations, Hirschsprung’s Disease, and severe idiopathic constipation.

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Utah Parent Center

The Utah Parent Center is a training and information center founded by parents of children and youth with all disabilities to help other parents facing similar challenges throughout Utah. The staff has built collaborative networks with education, health and human service professionals, agencies and organizations.
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Medical Home Portal

The Medical Home Portal is a unique source of reliable information about children and youth with special health care needs (CYSHCN), offering a “one-stop shop” for their: Families, Physicians, and Medical Home teams.

National Resources

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Pull Through Network

The Pull Through Network offers a forum of exchange of information among parents with common concerns in colorectal problems.

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Hirschsprung’s and Motility Disorders Support Network

An online network of people and families with children who suffer from Hirschsprung’s disease and other gastrointestinal motility disorders. HMDSN also offers a group specifically for adults with motility disorders.