Brain & Spine Center
Spina Bifida Program
The Spina Bifida Clinic at Primary Children's Hospital takes a multidisciplinary approach to the care of children with myelomeningocele, meningocele, lipomeningocele and other neural tube defects such as tethered cord. Specialists in pediatric neurosurgery, orthopedics, neurology and urology will work together in clinic to provide a personalized treatment plan for your child.
Patient & Family Resources
What to Expect
Our providers follow your child’s development closely with occupational therapist, physical therapist and psychologist who can help maximize your child’s physical, social and cognitive development. Nutrition and weight management is especially important for children with SB and a dietician is available in clinic as well to review your child’s growth.
Our clinic meets three Friday mornings a month. Your child will be seen by physicians, therapists, a nutritionist, nursing, and when needed, social work and psychology. You may not see each provider at every visit, but we are all available to help your child address issues associated with spina bifida.
Typically, you will be at the clinic for 1-2 hours to give you enough time to see all the providers who need to see your child that day. Though the visits can be long, it is important that you have time to meet with the providers and ask questions. At some visits, your child may have a brain MRI or bladder study that is scheduled before or during clinic.
Appointments for Friday afternoons in the Independent Skills Clinic typically last about an hour to learn about bladder catheterization or to meet with providers for mobility devices such as wheelchairs.