Thank you to the 5,000 participants who joined the HerediGene: Children’s Study! Each participants’ contribution helps bring us a step closer to finding future treatments and possible cures for genetic disorders.
The HerediGene: Children’s Study has concluded and is no longer enrolling children.

Intermountain Healthcare & the University of Utah are conducting this research to:

  • Better detect and predict disease
  • Develop new medicines, treatments, and measures to prevent disease
  • Personalize healthcare for future generations of families
  • Lower healthcare costs
  • Discover genetic causes for diseases such as cancer, heart disease, and neurodegenerative disorders

Frequently Asked Questions

What happens after my child has provided a sample?

Privacy – After your child’s sample was collected, we de-identified their personal health information.

Analysis We expect that in a small percent of participants, research testing may find a change in DNA (a genetic variant) that may lead to an increased risk for certain types of disease.

Results If a variant is found, a genetic professional will reach out to discuss additional testing and explain what any confirmed results mean (this is at no expense to the participant). Most participants will not be contacted after participation.